We are familiar with the story of this little resident of Olenegorsk – Egor Yorokhov – since 2012. After being affected by a heavy form of chicken pox at the age of 1.5 year the child suffers from retardation of psychomotor development and painful convulsions. Egor was diagnosed with Neuronal ceroid lipofuscinosis of type 1 (NCL type 1). It is a very rare genetic progressive brain disease. Unfortunately at present there is no effective treatment of NCL. The boy is under palliative care.
This summer the child turned 8 years old, all these years Egor’s parents have been fighting for his life and due to that the child feels relatively good. But in order to maintain the stable condition Egor needs permanent and expensive anticonvulsant therapy.
Sever Minerals has been trying to provide reasonable financial assistance to Egor and his family during all those years. For instance, at the beginning of August the company transferred the funds necessary for purchasing medicine.
From the bottom of our hearts we are wishing Egor good health and strength, as well as patience to the members of his family!
Egor’s support group https://vk.com/egorkahelpBack to all news